Page 2 of 2 FirstFirst 12
Results 11 to 12 of 12

Thread: Cystic fibrosis mothers' plea over 'life-changing' drug

  1. #11
    Quote Originally Posted by Jester View Post
    substantially, but so did vertex. If they're prevented from profiting off the drug, the CFF foundation will find it needs to fully fund any future drugs.
    CFF also gets a cut of the price of the drug (they have ownership interest in the patents) so even the CFF doesn't really want Vertex to take a loss. This might actually be mooted because Symdeko was recently approved for the very same class of patients and is significantly more effective with fewer side effects. However, it's marginally more expensive too.

    The irritating thing is that Orkambi isn't even in the top 10 of most expensive drugs:

    https://www.goodrx.com/blog/11-most-...ugs-in-the-us/

    It's just that Cystic Fibrosis is rare and by and large nobody gives a shit about it. If you have AIDS, they'll give you Dalparim and pay over $500000 a year. But if you have CF and your drug costs half that, people go apeshit.

    Pete (supposes people just care about AIDS more than CF)

  2. #12
    Database Error Put Master
    Jester's Avatar
    Join Date
    Aug 2007
    Location
    crap, I know this one!
    Posts
    15,239
    Quote Originally Posted by Plezercruz View Post
    CFF also gets a cut of the price of the drug (they have ownership interest in the patents) so even the CFF doesn't really want Vertex to take a loss. This might actually be mooted because Symdeko was recently approved for the very same class of patients and is significantly more effective with fewer side effects. However, it's marginally more expensive too.

    The irritating thing is that Orkambi isn't even in the top 10 of most expensive drugs:

    https://www.goodrx.com/blog/11-most-...ugs-in-the-us/

    It's just that Cystic Fibrosis is rare and by and large nobody gives a shit about it. If you have AIDS, they'll give you Dalparim and pay over $500000 a year. But if you have CF and your drug costs half that, people go apeshit.

    Pete (supposes people just care about AIDS more than CF)
    Aids is sexier -- magic Johnson has it! (Ok, he has the hiv, but you get the point)
    They speak in bulletpointese leftist nutjob drivel. It doesn't matter. Nothing is as great a motivator as the chance to truly be free.
    -Mr. Raceboy

Bookmarks

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •